Hearts for Binghams — the Lindsey Lou Heart Fund
On behalf of the Bingham family—Jason, Stacy, Sierra, Megan, Lindsey, Hunter, and Gage—thank you for visiting. We are sorry to have to have this site at all, but we all are all grateful to be able to offer Jason and Stacy and their family support during this incredibly trying time for them. We are equally grateful to see their courage and determination. Truly, in all their challenges we find great hope and inspiriation.
|A good way to follow Lindsey an Gage's progress is on our Hearts for Binghams page.|
If you are not familiar with the Binghams, the challenges they face, and the strength with which they are forging through them, please take some time today to read the brief material on this this site, or the more detailed accounts on Jason and Stacy's blog. If you would like to donate to support the imposing long-term medical costs that face them, information can be found on the donate page or the fund-raisers page. Please also visit our FAQ page, and the About this Site page to answer questions about donating, etc.
A final note... this site aims to thrust the Bingham family into public view—something they have resisted over the last six years. They have consented to this (at the request of others) only on account of the incredible circumstances they now face. Please consider their need for privacy as of prime importance while they deal with the crises they face. I can assure you that the Binghams thank you already. Let us all be patient and give them time and space to show their gratitude personally when they are able.
Facing the Unimaginable... Sierra's Heart Fails
In the summer of 2006 Jason and Stacy's oldest daughter, Sierra, was diagnosed with dilated cardiomyopathy. She was six years old. In short, her heart had weakened, causing it to enlarge to the point that it could no longer function adequately to support her body's needs. Sierra was suffering congestive heart failure.
Sierra's condition worsened quickly and she was transported to Stanford hospital in California where she could receive the best care available for her condition. The prognosis for Sierra became dire as the condition of her heart deteriorated, and in a short time she was placed on a transplant list to await a heart. If a heart did not become available in time, Sierra would have to be placed on mechanical support—a temporary and final life-sustaining measure.
There are no words to describe the anxiety that Jason, Stacy, and Sierra faced during this ordeal. Only those who have endured similar trials can truly comprehend.
Ultimately, a heart did become available and Sierra became the beneficiary. Sierra's transplant was successful, and the Binghams and all their family and friends were at last able to breathe a sigh of relief.
This brief account of Sierra's experience does no justice at all to incredible emotional, physical, spiritual and financial tolls that the Bingham family endured during Sierra's ordeal, and in the years of medication, testing, and biopsies which followed her transplant. While now active and vibrant again, because the risk that her body will reject the new heart will always remain, Sierra's fight will continue throughout her entire life. Receiving a new heart was just a beginning, of sorts. Sierra's is a trial that the Binghams will face indefinitely Even still, following the successful transplant and recovery, Jason and Stacy felt that this trial was more or less over. Perhaps with this trial, however, the Lord was preparing them for an even greater trial.
Reliving the Nightmare—Lindsey Faces the Same Trial
As if living through Sierra's ordeal were not bad enough, just a few short weeks ago (May 20, 2012) little Lindsey (Jason and Stacy's third child) was diagnosed with the same disease—dilated cardiomyopathy. Lindsey is eight years old. She was flown to the same hospital where Sierra was treated, and the Binghams began reliving the same nightmare they faced just six short years ago. Lindsey was placed on the transplant list June 20, 2012.
As Jason and Stacy keep a current blog—which was not in place when Sierra's challenges first began—we won't go into much detail here about Lindsey's current condition. We will let the Binghams keep us apprised of her situation and progress through their blog. That said, as of today she is on mechanical support—the Berlin Heart. It is a miracle of modern medicine to be sure, and we are so grateful that it is giving her an extended window of time as she and her family wait for a heart to become available. However, it is heart-wrenching to see little Lindsey Lou in such a condition.
I know that I can speak for the Binghams in expressing deep gratitude for the endless support they are receiving. May God grant Lindsey the miracle of a new heart and renewed strength. We all wish that this prayer were the only one we felt to raise to heaven for the Binghams right now—grave though it is. Sadly, there is yet more aid they require.
Lightning Strikes a Third Time—Gage Joins His Sister, Lindsey
As of the date of my writing this, it has been only three days since Gage—Jason and Stacy's fifth child—was admitted to the same hospital where Lindsey is currently being treated. In fact, for the first couple days they shared the same room in the CVICU. Back in May, when Lindsey was first diagnosed with dilated cardiomyopathy, doctors ordered tests for the Bingham's other children, no doubt citing the odds of two children in the same family developing the same condition. In addition to Lindsey's diagnosis, Gage had a slightly enlarged heart. Gage is three years old. He was started on medication to hopefully delay further deterioration.
Gage began showing signs of heart trouble just a few weeks later and, as noted, is now admitted with his sister—his current struggle is with a "complete heart block." An internal pacemaker was surgically implanted in early July to help regulate an asynchronous heartbeat. Jason and Stacy comment that he does not like it. We don't blame you one bit, Gage!
The Binghams are hopeful and courageous—they know that miracles do occur. They understand that they must be a pillar for their children, even though at times they're just as scared and just as overwhelmed as they are.
Donations are Appreciated
Jason and Stacy have not asked anyone to help them, but we—their friends—understand the high cost of the medical care they are receiving, not to mention the life-long costs that follow each child after a transplant. And so we do not shrink from organizing fund-raising efforts to assist.
If you are inclined to make a donation to the Bingham family, we thank you and want to be clear that every cent collected through this site goes directly into the Lindsey Lou Heart Fund (the fund was opened just before Gage's problems developed) in Lindsey's name. There are no administrative costs associated with the fund or this site.
And we want to emphasize that no portion of this site—including all fund-raising and donation efforts—was requested by any member of the Bingham family. We are the Bingham's friends. We love them and we're doing everything we can to help them during this difficult time. Some will be able to help with donations, other with time, and yet others with prayers and encouragement. All are equally important and are equally needed.
Thank you for visiting. One last note... I spoke to Jason recently and he and Stacy would also be grateful if family and friends would pray specifically that the doctors and staff at the hospital will be given wisdom in making the moment-to-moment decisions regarding Lindsey and Gage's care, that Lindsey and Gage's hearts and bodies will be strengthened and sustained while they continue to receive medical care, and that a family somewhere will have the courage and inspiration in their own unexpected moment of tragedy to make the decision to donate a heart that will find its way to little Lindsey Lou.
God bless us all—especially Sierra, Lindsey, Gage, the whole Bingham family and all those who face such trials.