Katie Hubbard, a lifelong friend of Jason and Stacy Bingham, has graciously organized a 5k run to benefit the Bingham family. This scenic run will take runners through the foothills and back roads of the beautiful Baker Valley, where the Binghams’ permanent residence resides.
Participants will start at the corner of Talley Dobbins Lane and Welch Road outside Haines, Oregon, and will follow the route below:
— East on Mansfield Lane for .4 miles to the Anthony Lakes Highway
— North on the Anthony Lakes highway for 1.1 miles, back to Talley Dobbins Lane
— West on Talley Dobbins Lane for .5 miles
— End at the Bingham home
Date: April 1st, 2017
Time: 10:00 AM (Runners please check in at 9:00 AM)
Cost to Register: $25
To register for the 5k run to benefit the Bingham family, please fill out the following form. While you may register on-location on the day of the run, please register as soon as possible. Register by March 4th and receive a free T-shirt (optional). T-Shirts may be picked up on-location the day of the run.
About the Binghams
Originally from Haines, Oregon the Binghams have been displaced from home and are living at the Ronald McDonald House near the children’s hospital at Stanford University in Palo Alto, California. Jason and Stacy Bingham are the parents of five children: Sierra, Megan, Lindsey, Hunter, and Gage. Three of the five children have been diagnosed with dilated cardiomyopathy. Dilated cardiomyopathy is a condition of the heart where the ability to pump blood decreases or fails because the left ventricle (the main pumping chamber) is enlarged and weakened. Neither of the parents or other relatives have the disease, so the mystery remains as to why these kids have this rare illness.
The disease was first diagnosed in 2006. Sierra was then a normal active six years old while Stacy was pregnant with their 4th child. The disease hit hard and fast and within days, Sierra was life flighted to Lucile Packard Children’s Hospital at Stanford where she received her first life-saving heart transplant after three gut wrenching months in and out of the ICU. Six years later in 2012, the family was shocked when their 3rd child, Lindsey, came down with the same disease. She too was life flighted to the same children’s hospital where she waited eight long months in the hospital connected to a heart machine called the Berlin Heart. For eight months, the family spent all birthdays and holiday’s in Lindsey’s hospital room. She later received her new perfect heart on Valentine’s Day 2013. Then in 2015, Sierra’s transplanted heart began to fail. In June she received her 2nd transplant. Today both Sierra and Lindsey take handfuls of medication, and have doctor’s appointments, biopsies, and blood draws as needed, but all-in-all are out of the hospital doing very well living normal teenage lives.
Currently, the youngest child, eight year old Gage, has been on the heart transplant list for over 14 months. In November of 2015, Gage began into acute heart failure and was surgically placed on the HeartWare machine. The HeartWare is a small pump inserted into the diseased heart to assist with the blood flow until a donor heart can be located. He now carries a backpack which holds the controller and batteries which run the pump. As of today, Gage is the youngest patient in the hospital to have this device and to have waited this long (420 days and counting). Unlike his older sisters, Gage is able to wait for his new donor heart out of the hospital at the Ronald McDonald House.
This represents the facts of the story. The real struggles and challenges come from managing the children’s health issues while providing a ‘normal’ life for all five children. All five kids are in public schools, and participate in sports or other activities. Ten year old Hunter and fifteen year old Megan, the other two children, currently have no symptoms of the heart disease, but are checked annually. Hunter goes to school and plays sports in California, while Megan lives with extended family in Oregon. Gage also goes to a public school with his mother Stacy as a school nurse. Lindsey and Sierra go to school in Palo Alto and work hard to keep up with homework while tending to their medical needs. Jason travels to/from Oregon to support their daughter and manage his accounting work, while being a father and husband in California.
The cost associated with managing heart kids can be overwhelming. Between the surgeries, heart machines, ongoing rejection medication, travel to/from Oregon, doctor appointments, biopsies, blood draws, California living expenses, missed work, the costs seem to stack up. With all this, the Binghams, though sometimes discouraged, feel blessed to still have five children alive with a chance at life. They look forward to the day when the entire family can return to their home in Oregon. The purpose of this 5K is help gain awareness for the need for organ donation, and to help keep those miracles coming.
Tax-deductible donations can be made to the Eastern Oregon Transplant Trust at:
1990 Washington Ave.
Baker City, OR 97814
Other donations can be paid to the Bingham Children Heart Fund at Umpqua Bank or through PayPal, using the button below: